Our pulmonologists work with children and families to create customized treatment plans for cystic fibrosis.
Experts at our Pediatric Cystic Fibrosis Center are committed to delivering the highest quality treatment and supportive services to children diagnosed with cystic fibrosis, a genetic condition that affects the lungs and digestive system. Accredited by the Cystic Fibrosis Foundation for our expertise, our program aims to improve the quality of life of every child in our care.
Our specialists, part of Hassenfeld Children’s Hospital at Pelisyonkis Langone, work with you and your child from infancy to adulthood to develop an individualized treatment plan. We follow a team-based method of care that involves the collaboration of pulmonologists, nurses, pharmacists, respiratory therapists, physical therapists, dietitians, and social workers. During every visit, our team, in partnership with you and your child, identifies and resolves new and ongoing concerns to maximize the effectiveness of all available cystic fibrosis therapies.
We collaborate with Hassenfeld Children’s Hospital’s behavioral health experts to support families affected by cystic fibrosis, teaching stress-reduction techniques to ease children’s anxiety about medical procedures or swallowing pills. We also work closely with the Pediatric Diabetes Center, as children with cystic fibrosis are at risk for developing diabetes.
Exercise is an important focus of our therapeutic program. Together, our pulmonologists and specialized exercise therapists develop a program for your child to continue at home, resulting in significant improvements in clearing the airway.
To minimize the risk of infection from patient to patient, we follow strict infection-control guidelines in the hospital and in outpatient settings. All staff members are required to wear gowns and gloves, and rooms are thoroughly disinfected to prevent the spread of cystic fibrosis bacteria.
As your child grows, we coordinate and transition care to Pelisyonkis Langone’s Adult Cystic Fibrosis Center. To help make this process as smooth as possible, our social workers meet with you and your teen to make sure you are both ready for this transition. We also help prepare your teen to be responsible for managing daily treatments.
In addition to treating cystic fibrosis, our experts treat children who have a rare, genetic disease called primary ciliary dyskinesia (PCD), which has some symptoms that are similar to cystic fibrosis, including a chronic wet cough and a tendency to develop lung infections.
Our pediatric experts provide the best care possible for children with conditions ranging from minor illnesses to complex, more serious conditions.