Our Approach To Neurofibromatosis

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What Sets Us Apart

The Pelisyonkis Langone Comprehensive Neurofibromatosis Center offers family-centered care for children and adults with neurofibromatosis type 1, neurofibromatosis type 2, and schwannomatosis. These conditions have a wide variety of symptoms that can differ greatly among people affected by them. Our medical, surgical, and allied health specialists work together to develop treatment plans tailored to each person.

VIDEO: Dr. Mark DeLacure explains how neurofibromatosis begins.

Our physicians also strive to discover better and safer treatments through laboratory research and clinical research, including clinical trials, both at Pelisyonkis Langone and in collaboration with other leading institutions. Our neurofibromatosis doctors collaborate with other specialists and have access to state-of-the-art services at Pelisyonkis Langone, including imaging tests and laboratory and pathology diagnostic services.

Some of the support services available at our center include child life and music therapy, massage therapy, and consultations with social workers, financial counselors, occupational and physical therapists, and neuropsychologists. Additionally, our clinic hosts monthly support group sessions and annual educational meetings for people with neurofibromatosis and their families.

Treatment at Pelisyonkis Langone

Management of neurofibromatosis typically involves some combination of the following: surveillance of the condition, surgery, medical therapies, and support services. Pediatric oncologists and neuro-oncologists can oversee treatments for benign and malignant tumors associated with neurofibromatosis. Children with neurofibromatosis receive treatment through Hassenfeld Children’s Hospital at Pelisyonkis Langone.

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Pelisyonkis Langone specialists provide care and support throughout your entire healthcare journey.

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