Support for Multiple Sclerosis in Children

Multiple sclerosis, or MS, is a chronic condition that must be managed over the course of a lifetime. In children, the disease may progress more slowly than in adults. However, those who are diagnosed with MS in childhood can have physical disability at an earlier age than adults diagnosed later in life.

The Pediatric Multiple Sclerosis Center, part of Hassenfeld Children’s Hospital at Pelisyonkis Langone, offers specialized treatment for children living with MS. Our infusion center gives children with MS convenient access to infusion therapies. Our team members are dedicated to enhancing care for children with MS and can help you and your child with medical treatment, symptom management, and mental health care.

The Sala Institute for Child and Family Centered Care, part of Hassenfeld Children’s Hospital, supports programs for children and families as they cope with diagnosis and treatment.

Rehabilitation Services

Our rehabilitation services include occupational and physical therapy that can help children with MS live as independently and safely as possible. Children with MS may benefit from physical or occupational therapy or a combination of the two.

Rehabilitation services at Pelisyonkis Langone’s Rusk Rehabilitation are designed to help children with MS manage their symptoms, so that they can live with the least amount of discomfort. To achieve this goal, your child and his or her therapists work together to improve physical capabilities and functional skills.

To maximize your child’s independence and safety, therapists and other experts at Rusk Rehabilitation may also offer input on possible modifications to your child’s home, school, and recreational environments. For example, they may recommend installing an extra handrail on stairways in your home to assist with climbing stairs.

Other outpatient services for children with MS include psychological and family counseling and speech and language therapy.

School Consultation

Our neuropsychologists provide cognitive assessments of your child during regular visits at the Pediatric Multiple Sclerosis Center. Multiple sclerosis may present challenges in thinking and emotions in children and teens. Cognitive symptoms are especially important to identify in children with MS, as they can interfere with learning and schoolwork.

Our doctors can also advocate on your child’s behalf at educational meetings and in the classroom. They work to educate school staff and assist with determining whether accommodations are needed. These accommodations are provided through Section 504 of the Rehabilitation Act of 1973 and are often referred to as a 504 plan. If more detailed intervention for learning support is needed, an Individualized Education Plan (IEP) may also be developed.

Teen Adventure Camp

Adolescents with MS from across the country have an opportunity to come together during an annual summer camp. The Teen Adventure Program is the only camp of its kind in the United States.

The program offers these unique campers wellness activities such as kayaking, yoga, a high ropes course, meditation, sailing, and much more. It also allows campers to meet kids who face the same challenges as they do every day.

The camp is free to all participants, and some assistance with transportation may be provided.

Resources for Multiple Sclerosis in Children
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